Muscle ultrasound helps assess muscle health and its association with motor function in SMA children treated with Spinraza, a ...
The one-time gene therapy Itvisma will now be available for people with SMA of all ages in the European Union after winning ...
A study found Evrysdi (risdiplam) helps the body produce more SMN, and also revealed genetic differences between SMA types 2 and 3.
For guest writer Maria Llave, having consistent access to Medicaid provides peace of mind, enabling her to focus on her future.
Columnist Kevin Schaefer says that the days of having a hospital room as a place of residency are hopefully behind him, which ...
While attending concerts, columnist Connie Chandler was frustrated that she was unable to express joy. Then she found a clap ...
Restoring SNAP23 or replenishing these vesicles shows promise for improving bone health in SMA. Weak bones in people with ...
Columnist Brianna Albers says that moving out of her long-time home with SMA has turned out to be her biggest gamble yet.
Columnist Helen Baldwin says she learned this lesson when her third baby, Jeffrey, was born with SMA in the late 1990s.
SMA Europe is accepting proposals for research projects, with motor regeneration and SMA metabolism among the priority areas ...
I recently wrote about how I’ve been in the process of transitioning from a children’s hospital to an adult hospital. It’s meant saying goodbye to the place that knew my medical history better than ...
When I graduated from college in 2005, I received a special gift: a large whiteboard to hang on the wall. It had 38 pictures on it showing many of my adventures with SMA and other key moments I’d had ...
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